Present Day, July 12th, 2017

Quality of life.

An improved quality of life.

Sitting in my therapist office, reflecting on his traditional opening question (“So, what are we going to talk about today?”), I found myself giving that answer. Because that is what I had reflected on recently. That is what my mind had been on during the drive over. That was what I had come to believe needed to be a significant goal for me going forward.

As the one year anniversary of my hospitalization (and subsequent release) approaches, I have been faced with the reality of having survived the breakdown. Since the first week of September last year, I have avoided any episodes along the lines or magnitude of that horrific week. It has not been easy. At times, harder than hell. But I have managed. I have given intense focus to the big three (Sleep, Therapy, Medications), and have tried to consider most other things the minors to those majors. I have attempted to reward myself more, punish myself less, recognize small accomplishments, and let other takers be my worst enemy rather than fulfilling that role myself. But that all has left me with the question, “Now what?”

That is what has been stuck in my craw (because in Kentucky, we use phrases like that). Now what? Or, put another way. Possibly a more negative way. The question might go like this: “Is this really as good as it gets?” Is this the way I need to anticipate living the rest of my life? Is this the best I can do? This combination of drugs providing this baseline of emotions just this side of depression. This cycle of sleep merging nights and naps and zombie like periods of awake. This week after week battle to get out of bed and knock another seven days off the calendar.Having survived the big scare, it seems logical that my attention might shift to the year after. And dare I venture to let my mind explore the possibility not merely of having survived, but now attempting to find a way to thrive.

Having survived the big scare, it seems logical that my attention might shift to the year after. And dare I venture to let my mind explore the possibility not merely of having survived, but now attempting to find a way to thrive.

I have set some goals as to what this might look like. First, I have more than five months left in the insurance year with my out-of-pocket limit reached. Therefore, I will be meeting with my medications coordinator next Tuesday and asking her if we might experiment a bit. Venture away from the only cocktail I have utilized since leaving the hospital in an effort to find something that leaves me a little less comatose. A little less down. A little less fat!

Second, the employment situation simply does not seem sustainable for the long haul of my life. The doctors in Chicago didn’t think it was. The team at home seems to question whether it is. My own physical and mental stability seems to doubt it. Granted, for us bipolar, few employment situations seem sustainable for the long haul, but I do think there are three standards I can improve on: a) a later wake-up time than 3 a.m., b) weekends off, and c) the ability to accrue some paid time off (i.e. vacation). Seems reasonable, right? In four more weeks, I will have two children living out-of-state, and I need the opportunity to visit them. This job simply does not afford that. Financially, or time wise.

Finally, and this one is so hard, I have to lose some weight. I’m up 20 lbs since leaving the hospital…as the staff there suggested it would be easy to be. I’m up 30 lbs since losing almost 50 roughly three years ago. It takes a toll on me physically, emotionally, and motivationally. So as much as I disdain working out and dieting…I have to lose weight if I want to improve my quality of life.

For much of this, I have less idea of how to make it happen than I do the need for it to happen. But this is the next year before me. A year of quality of life. A year of improved quality of life. As long as I’m going to stick around, seems like I might as well enjoy doing so.

 

Present Day, March 21st, 2017

I have started playing the piano again. Actually, I should probably say again, again. I gave it a go last year, but it wasn’t a very valiant or persistent effort. I printed out a few rudiments and songs, quickly found myself frustrated by my lack of ability, and surrendered before Christmas arrived.

I decided that a little cash investment might help this time around. So I purchased a book of classical pieces at a beginners level. Less than $10. I did say a “little cash investment.” I have set some practice goals, and so far am sticking to them. Very modest beginnings. A few times a week for a few minutes at a time. Just to develop some consistency.

Consistency is so difficult. Tomorrow is my bi-monthly therapy day. My therapist was proudly touting at my last session that I had never missed an appointment since being released from the hospital last September. I guess that might not be the norm.

I can’t think of a day in that same period of time when I have missed my medications. Been a little late a few times, but tomorrow makes 200 days without missing a beat. And trust me, that is a shit ton of pills. A shit ton of feeling drowsy. A shit ton of battling weight gain. A shit ton of wondering where in the hell my sex drive went. A shit ton of shit tons.

Since September I have not had a week go by where I did not average at least 7 hours of sleep per night. That is kind of a magic number for me, and not always an easy one to achieve with a job that sounds the alarm at 3 a.m. every morning, and a 2nd grader and 8th grader that return from school 12 hours later. But I have found a way to be consistent. To get the job done.

Yoga. Exercise. Reading. Journaling. Oh…and blogging. All things that I find valuable to my mental health and well-being. All things that require an effort at consistency.

And I know this is true for all of us. All of us as people. So this isn’t some attempt at a pity party, but it is a reality check. Because when my consistency fades…things turn bad. Real bad.

Little things aren’t little things when if they aren’t done the next thing on your mind is how to take your own life. Consistency isn’t “optional” when inconsistency creates a crisis that sends your life and all those directly connected to you into a violent tailspin. Checklists are more than check boxes when they are necessary to keep the thoughts between your ears in check.

HOWEVER, it is fatiguing. On a good day. Exhausting on a bad. And much like sitting down at the piano, it can often seem like having to start back where I left off decades ago.