Present Day, November 21, 2017

Reminders…

…pills

…therapy

…paranoia

…dark depression

…racing thoughts

…no pleasure

…irritability

…pills

…constant fatigue

…suicide ideation

…shame

…medication management

…lack of concentration

…pills

…lethargic living

…instant anger

…insomnia…

followed by stuck in bed…

…catastrophizing

…more pills

…and more pounds

…and more reminders.

Present Day, October 8, 2017

There are a lot of things that have headed in the right direction for my life over the past 90 days blogging hiatus. Including the avoidance of some pretty significant pitfalls and traps. I have come through all of them relatively unscathed. However, one area has not gone so well. In fact, it has gone down right horribly. My weight.

10 pounds in 90 days. 20 pounds in 9 months. 30 pounds since being placed on medications and being released from the hospital in September of 2016.

This would come as no surprise to any educated psychiatric provider. In fact, I was warned of it during my last psych review at the hospital. Even warned it would amount to 20 to 30 pounds on average. Guess they called that one.

It is one of the catch 22s of bipolar medications. Feeling depressed? Don’t worry, your meds will help you feel groggy and lethargic. Bad self-image? Don’t sweat it, your meds will help you put on weight and feel even less good about yourself. Uncertainty an issue? No biggie, your meds will leave you trembling and nauseous. In other words, the stuff you need to help you can just as easily hurt you. Or best case scenario, greatly frustrate you.

In the case of my weight, other frustrations are at work. I made a commitment roughly three weeks ago to begin exercising on a regular basis. According to my Fitbit, have managed to log a decent workout 17 of the last 20 days. That’s pretty damn good. But the weight keeps climbing.

I downloaded “My Fitness Pal” to my phone and began counting calories. This was about 10 pounds ago. Back when I thought to be 20 up was enough and it was time to turn the tide. Granted, I have been far from legalistic with it, but I have paid attention which is more than I had done. But the weight keeps climbing.

I had to go through the degraded process last week of updated the wardrobe. Maybe you have been there. The waist gets too tight, and to avoid complete discomfort, it becomes necessary to hit the Goodwills and upsize a bit. Goodwills rather than new retail because you are convincing yourself that this is not going to be a permanent change. The weight will come back off. You’ll figure this out. But in the back of your head, you are wondering if that is true. You are wondering if this is even where it stops.

I am within five pounds of my all-time high. That weight was not medication driven. Just too much time not taking care of myself while sitting at a desk. One morning while going through the struggle of tying my shoes I decided enough was enough. The journey began, and over the next few months (I can’t really remember how long) I dropped just short of 50 pounds. And most of them stayed off until being hospitalized last fall. Now they are almost all back, and I have to try again.

I recently received blood work back from an annual physical. I am pre-diabetic. My kidney function has dropped (maybe related to the massive stone and surgery earlier this year…maybe not). My bad cholesterol (at least, I think it is the bad one) is up a bit. There are plenty of reasons to drop some weight. And tomorrow I will start the journey again.

Maybe past success will provide hope for the future path. One thing is for sure, of all the things that are on my side…the medications are not on the list.

Present Day, October 7, 2017

12 weeks. Such a perfect number in some ways. Three months. A quarter. And without even intending to make it so. That is probably what excites my neurotic mind most.

It has been 12 weeks since I last posted on this blog. And what a 12 weeks it has been. To be honest, there was no direct intention the day I submitted that post to take such a hiatus. It all unfolded very naturally. Very organically. A week or two break. Some anniversary and life changes unfolding that made staying away the healthier choice. Chaos of daily living beginning to unfold in a new and fresh way. And before you know it…three months are gone.

My current intention? To catch you all up (which really means to take some time to process through this three months within my mind and allow you to come along for the ride …if you are so interested) on life from then to now. The losses I have experienced. The “quality of life” (see – Present Day, July 12th, 2017) improvements I have managed to navigate. The anniversaries that have been survived. And hopefully all within the context of the original purpose and goals of this venture (The Next 100). In other words, to get back into the habit.

Why? Because it is part of my therapy. It is part of living and staying healthy. Because when I am “healthy”, I truly enjoy writing. I enjoy the expressiveness of it. The “getting out of my own mind” of it. The ability to release my thoughts from the cage of my skull to a place where they can be free and I can be free to move on to new, present ways of thinking. Because I have entered a new phase of life (more on that down the road), and this phase needs some filler. Needs some hobbies. Needs some anchors which help me focus on a daily…or at least weekly basis.

So for those who so choose…all aboard! Welcome back onto the train. If you are new, feel free to troll and scroll and catch up on the past 15 months that this blog has been dedicated to. If you are a long timer…yep, I’m still alive and kicking and living out the clickety-clack rhythm of the rails. Still taking my meds. Still logging my sleep. Still going to therapy. Still recognizing that bipolar disorder is not something you overcome, but something that you can manage with hard work and diligence.

…and still believing that living with a mental illness does not exclude one from the rightful pursuit of an ever-improving quality of life.

Present Day, July 12th, 2017

Quality of life.

An improved quality of life.

Sitting in my therapist office, reflecting on his traditional opening question (“So, what are we going to talk about today?”), I found myself giving that answer. Because that is what I had reflected on recently. That is what my mind had been on during the drive over. That was what I had come to believe needed to be a significant goal for me going forward.

As the one year anniversary of my hospitalization (and subsequent release) approaches, I have been faced with the reality of having survived the breakdown. Since the first week of September last year, I have avoided any episodes along the lines or magnitude of that horrific week. It has not been easy. At times, harder than hell. But I have managed. I have given intense focus to the big three (Sleep, Therapy, Medications), and have tried to consider most other things the minors to those majors. I have attempted to reward myself more, punish myself less, recognize small accomplishments, and let other takers be my worst enemy rather than fulfilling that role myself. But that all has left me with the question, “Now what?”

That is what has been stuck in my craw (because in Kentucky, we use phrases like that). Now what? Or, put another way. Possibly a more negative way. The question might go like this: “Is this really as good as it gets?” Is this the way I need to anticipate living the rest of my life? Is this the best I can do? This combination of drugs providing this baseline of emotions just this side of depression. This cycle of sleep merging nights and naps and zombie like periods of awake. This week after week battle to get out of bed and knock another seven days off the calendar.Having survived the big scare, it seems logical that my attention might shift to the year after. And dare I venture to let my mind explore the possibility not merely of having survived, but now attempting to find a way to thrive.

Having survived the big scare, it seems logical that my attention might shift to the year after. And dare I venture to let my mind explore the possibility not merely of having survived, but now attempting to find a way to thrive.

I have set some goals as to what this might look like. First, I have more than five months left in the insurance year with my out-of-pocket limit reached. Therefore, I will be meeting with my medications coordinator next Tuesday and asking her if we might experiment a bit. Venture away from the only cocktail I have utilized since leaving the hospital in an effort to find something that leaves me a little less comatose. A little less down. A little less fat!

Second, the employment situation simply does not seem sustainable for the long haul of my life. The doctors in Chicago didn’t think it was. The team at home seems to question whether it is. My own physical and mental stability seems to doubt it. Granted, for us bipolar, few employment situations seem sustainable for the long haul, but I do think there are three standards I can improve on: a) a later wake-up time than 3 a.m., b) weekends off, and c) the ability to accrue some paid time off (i.e. vacation). Seems reasonable, right? In four more weeks, I will have two children living out-of-state, and I need the opportunity to visit them. This job simply does not afford that. Financially, or time wise.

Finally, and this one is so hard, I have to lose some weight. I’m up 20 lbs since leaving the hospital…as the staff there suggested it would be easy to be. I’m up 30 lbs since losing almost 50 roughly three years ago. It takes a toll on me physically, emotionally, and motivationally. So as much as I disdain working out and dieting…I have to lose weight if I want to improve my quality of life.

For much of this, I have less idea of how to make it happen than I do the need for it to happen. But this is the next year before me. A year of quality of life. A year of improved quality of life. As long as I’m going to stick around, seems like I might as well enjoy doing so.

 

Present Day, March 21st, 2017

I have started playing the piano again. Actually, I should probably say again, again. I gave it a go last year, but it wasn’t a very valiant or persistent effort. I printed out a few rudiments and songs, quickly found myself frustrated by my lack of ability, and surrendered before Christmas arrived.

I decided that a little cash investment might help this time around. So I purchased a book of classical pieces at a beginners level. Less than $10. I did say a “little cash investment.” I have set some practice goals, and so far am sticking to them. Very modest beginnings. A few times a week for a few minutes at a time. Just to develop some consistency.

Consistency is so difficult. Tomorrow is my bi-monthly therapy day. My therapist was proudly touting at my last session that I had never missed an appointment since being released from the hospital last September. I guess that might not be the norm.

I can’t think of a day in that same period of time when I have missed my medications. Been a little late a few times, but tomorrow makes 200 days without missing a beat. And trust me, that is a shit ton of pills. A shit ton of feeling drowsy. A shit ton of battling weight gain. A shit ton of wondering where in the hell my sex drive went. A shit ton of shit tons.

Since September I have not had a week go by where I did not average at least 7 hours of sleep per night. That is kind of a magic number for me, and not always an easy one to achieve with a job that sounds the alarm at 3 a.m. every morning, and a 2nd grader and 8th grader that return from school 12 hours later. But I have found a way to be consistent. To get the job done.

Yoga. Exercise. Reading. Journaling. Oh…and blogging. All things that I find valuable to my mental health and well-being. All things that require an effort at consistency.

And I know this is true for all of us. All of us as people. So this isn’t some attempt at a pity party, but it is a reality check. Because when my consistency fades…things turn bad. Real bad.

Little things aren’t little things when if they aren’t done the next thing on your mind is how to take your own life. Consistency isn’t “optional” when inconsistency creates a crisis that sends your life and all those directly connected to you into a violent tailspin. Checklists are more than check boxes when they are necessary to keep the thoughts between your ears in check.

HOWEVER, it is fatiguing. On a good day. Exhausting on a bad. And much like sitting down at the piano, it can often seem like having to start back where I left off decades ago.