Or maybe I’m dumb
I’m sorry, so sorry for what I’ve done
Maybe I’m bad natured
Or maybe I’m young
I’m sorry, so sorry for what I’ve done…
My daughter is a sophomore at NYU. She also interns (and has interned) with organizations which focus on the rights and advocacy of individuals based on gender, race, and mental health based issues.
Recently, she was researching CIT (Crisis Intervention Team) New York Police Department trained officers. These are police officers specifically trained to assist with situations involving mental illness, development disability or emotionally disturbed peoples. Following are some of the statistics and bullet points from her research. Take them for what they are worth as food for thought and information to ponder in our modern-day struggle to provide quality assistance and help to people struggling with mental health and in crisis situations.
It seemed so bright for 4 a.m. Too bright. A quick look out the window explained the reason. A significant snow had fallen. From the view of the bedroom window, maybe as much as six inches. Which in this town typically means shut down. As in, life shut down.
Which caused me a bit of a predicament at this early hour because I had never before had a “snow day” at this workplace. Would I receive a text? Would they post it on the local TV channels? Would they even shut down due to a snowfall? All of which meant that the two and a half more hours of sleep I had waiting for me, in either event, was now shot to hell.
When six o’clock rolled around I decided to grab my phone and check in on the snow closings. Sure enough, there near the top of the list (as our company name starts with an “a” followed by a “c”) was the indication that we were closed for the day. (Ironically enough, and unbeknownst to me until later…not because of snow, but because of a power outage caused by the snow. Thus meaning, I still do not know if we in fact shut down for snow.)
A few snooze alarms and FitBit notifications later (don’t ask), and I actually managed to fall back asleep. Most likely in the 6:45 range, but regardless my next significant conscious moment didn’t come until around 8:25. A nice additional block of sleep to help compensate for the previously lost.
Bring on stressor number two. Being closed doesn’t mean the customers that direct work my way will be shut down today. Meaning double the work will be awaiting me tomorrow. Maybe not a huge deal in a normal week. However, this is not a normal week. It is my birthday week. Which means I am scheduled to utilize my free day off on Friday and enjoy an extended weekend. Alas, a four-day week is now a three-day week.
I was texting the same thoughts with a co-worker who ended the conversation with “try to enjoy the day off.” I am pretty sure she was sensing that I was probably more stressed about the work awaiting tomorrow then I was focused on enjoying the free day that had fallen into my lap today. She would be correct.
Seeing the pattern here? I imagine most people would flashback to 4 a.m. and respond with something like… “Looking like a snow day!!!” Then they would check back in around alarm time, and enter into a true celebration of the gift that is a day away from work (and/or school).
Not me. Not my mind. Not that simple.
The difference is not the reasonableness of stress or the unknown. It is more the management thereof. I assume everyone experiences some curiosity as to if they will get the day off. Everyone likely wants to make sure they get accurate information rather than guess about staying home from work. Everyone probably thinks ahead to the fact that a double day of work will likely be awaiting them. But not everyone obsesses about any of the above. Or loses valuable sleep due to them. Or sees a day slip away in stress rather the enjoyment of “didn’t see this coming when I went to bed.”
Obsessive minds do. Racing minds do. My mind does.
4 a.m. was almost 10 hours ago. The good news is, I seem to have it all under control now, and with still a good six or seven hours of a day to enjoy. I’m sure the panic will come back as the sun sets. That’s just part of it. But for now, it is a half a snow day to enjoy, at the launch of an unpredictable three-day work week.
As someone with a constantly racing mind, a new found practice of mindfulness has been a welcome place of rest. It is still very much a “practice” for me, and one that I struggle to successfully achieve for as short as a 10 minute period. However, I look forward to it each and every day and feel the calmer for it on the other side. At the same time, it does cause me a significant predicament.
I think we are all wired and prone to have an acute awareness of contrast. For example, severe changes in the weather. The audio launch of a rock concert. A bite into a particularly spicy dish. From level ground to a steep incline during a forest hike. We tune into these things, and they cause a sensory response in our bodies. Be it touch, hearing, taste, or even sight and smell. Contrast is simply a part of how we differentiate and how things are set apart in our minds and feelings.
The practice of mindfulness magnifies a rather extreme contrast in my living environment. I am already rather introverted and silent. I already value solitude and quiet above the average person. And I already struggle with the, at times, lack of appreciation other people might share for these same qualities. Couple that with the “contrast” of mindfulness sessions to regular life…and I can go from a state of peace to set on edge pretty rapidly. I know, totally contrary to the whole purpose of my mindfulness practice.
In fact, just finding a peaceful and alone time or location to engage in as little as a 10-minute meditation can be a challenge on some days.
The company I work for is owned by a Japanese corporation and therefore utilizes many of their workplace ideals. One example is the open workspace. Picture Dunder Mifflin from “The Office”. No cubicle walls. No offices except for the few at the top of the food chain. It is also a bi-lingual environment. Meaning that I am often working at my desk with a full volume conversation taking place over my left shoulder in Japanese, and a full volume conversation taking place over my right in English. Mind you, neither of which involve me or are of any importance to me. This environment makes my lunchtime mindfulness session 1) invaluable and 2) often immediately forgotten upon returning back to work. The contrast can be overwhelming.
This is my predicament. The practice designed to bring me peace can highlight an overall lack of peace. The practice designed to help me with a singularity of focus can highlight an ever run amuck mind. The practice designed to calm my life can often do little more than emphasize a greater lack of calm in my moment to moment existence.
For now, I look forward to my 10 minutes a day. And work on accepting the other 23 hours and 50 minutes in all their chaos.
The lack of societal progress in dealing with mental illness is as easy to see as attempting to determine if it is a disability. For this simple journey will make it rapidly clear that we still have no idea how to identify what we are dealing with.
This became clear to me during my recent (and latest of many) employment searches. Most applications now conclude with three voluntary questions that are largely demographic in nature. One dealing with gender. One dealing with military veteran status. But a third dealing with disabilities.
The questions itself could not make things clearer. It simply requires a yes, no, or choose not to disclose affirmation. For someone with a diagnosed illness, such as myself with bipolar, it gets even easier. Because it states in plain English, “Disabilities include, but are not limited to…” and then proceeds to list roughly 18 specific disabilities to include such mental illnesses as schizophrenia, major depression, obsessive-compulsive disorder, PTSD, and yes…bipolar.
Here is the logic: disabilities include bipolar. I have bipolar (as has been diagnosed by no less than a hand full of independent professionals). Therefore, I have a disability. Right? Not so fast.
If in fact you have a disability that severely limits your daily function and ability to adjust to daily work, you qualify for something called Social Security Disability Insurance. However, in the case of bipolar, or a number of other mental illnesses, the emphasis should be put on “severely”. This is because the criteria to qualify for benefits becomes much greater than any criteria that were originally utilized to result in a concrete diagnosis.
Put another way, the system is set to credit corporations and business for diversity hires of us mentally crazed individuals, but not set to do anything to help us. Get them in the workforce, and keep them there. Short of announcing my legally private mental illness to the employer, there will not be any consideration of accommodations, or assistance for living with what has already been defined as a disability. Begging the questions, what do they think it disables me from doing?
Why do I care? I mean, I go to work. I have a job. I have stayed employed for the majority of the past 30 years. What should it matter to me?
It matters because work is the single largest deterrent to my quality of life. For people with depressive disorders, and others, getting out of bed in the morning is a major chore. That chore is followed by a second one of getting out the door and engaging in a profession. The vast majority of my emotional energy Monday through Friday is exhausted simply attempting to stay gainfully employed. Day after day. One step at a time.
Now, granted, I think our country suffers from a larger systemic problem. Namely, we have made work the centerpiece of our lives. Just compare time off in other developed countries to America. Especially as it relates to things such as maternity (and or paternity leave…total novelty!), sick time, and personal time (for such things as doctor visits, and basic life care that is almost impossible to take care of outside normal work hours). I am not advocating a country of sloths, but how did it ever become the intention that we work in order to be able to live rather than work as a part of living?
I am less than six months into my latest place of employment, and I am fried. I am largely sedentary for eight hours a day staring into a dual monitor set-up conducting data entry. I shake off the hangover of my medications in the morning just soon enough to plop down at my desk and fall back into a full-time stupor of what can at times be fairly mindless activity. But I had to change jobs. Again.
I had to find something with at least some time off. With at least some form of decent benefits. With at least some compensation that could pay a majority of the bills. And while my family, my sanity, and my overall personal life suffers…I come nowhere close to the government definition of someone in need of disability benefits.
Which is kind of ironic, because that same government has joined the long line of doctors declaring that I am in fact disabled.
Doctor: “On a scale of 1 to 10 with 10 being your best day ever, how have you been feeling?”
Me: “Wow…umm…2? Maybe 3?”
Life is hard.
phi-lat-e-ly /feladle/: the collection and study of postage stamps
Hobbies have been difficult to come by for me. In the past few years I have tried to take back up the piano. Could never return to where I even was in my teen years. Hardly my elementary school level! Way too self-conscious of my own ineptness and unable (willing) to find (take) the time to claw my way back.
I ventured into other adult creative efforts. A daily prompt journal. Worked with adult coloring for a period. But struggled with perfectionistic needs to stay in the lines. The slightest sway outside taking me away from the work completed to date. A lack of creativity requiring a photo of the image to even select colors and shades. More of a burden than a relaxation.
But I have needed something. Something to occupy my mind. Something to bring a sense of calm during downtime. Something to help fill the hours of free time that my new work schedule can afford me on the weekends.
Earlier in my adult life I collected sports cards. Thousands of them. I know it is crazy, but an obsessive mind like mine could find great pleasure in opening packs, sorting numbers, and building complete sets. The hunt for the missing pieces to the puzzle that would tidy up the series. The history of the players and games uniquely chronicled on the cards. The adventure of sub-series or inserts that added even more intrigue to the search.
For hours on end, I could think of nothing else. It would take my mind, in a good way, off the other thoughts that can race through it. Just this side of manic? Maybe. But better than plunged into a sea of depression.
However, sports cards are expensive. And when most parties are honest about it, there is not much return on the hefty investment. Yet it got me thinking even further back into my life. To my childhood. To a very brief sliver of my childhood when another, similar hobby occupied periods of my free time. Stamp collecting.
And then I got the itch.
I began doing some online research. IF…IF I were to go down this path, what would I collect? How would I limit myself? What parameters would keep it enjoyable and keep it from being an all hours of the night manic obsession? When would I collect while still keeping other responsibilities and goals (i.e. reading) in sight?
The more I explored, the more excited I got…and this last week I decided to take the plunge. To see if this could be a place of fulfillment. Of hobby. Of pleasure. Something to build on through the years. To enjoy learning, expanding, studying.
So far, so good. But I’m bipolar and the first few days of just about anything in my life are so far, so good.
Here is the thing – racing thoughts and a manic mind are not inconvenient side effects of the bipolar life. They are serious challenges. Possibly even dangers. What for many people can be a restless night or afternoon of obsessing can for a bipolar person be the beginning of a serious slide…crash…or even worse. Thus having a hobby to counter that is about more than just…well, having a hobby. It is about a safety net. A place of sure footing. At times, even a refuge or escape to allow our minds to be captivated by a single thing in order to cease the endless ruminations.
That is a lot to ask from an album and some postage stamps, but I do not have to perform for anyone. I get to make the rules for my collection. The lines are of my choosing…if I choose to have any at all.
One week and a few hours in…so far, so good.